Submitting Ebola data

All members of the research, health and humanitarian communities are invited to contribute data to the platform. By standardising and aggregating all available Ebola data we can address knowledge gaps in order to improve patient outcomes and outbreak response.

We accept all patient-level data on clinical, laboratory and epidemiological parameters for patients suspected, infected, in contact with or previously infected with Ebola virus disease. If you are not sure whether your data is suitable for the platform, please contact us at ebola [at] iddo [dot] org to discuss. 

Individual patient-level datasets collected as a part of clinical care and follow-up, laboratory services, public health response, epidemiological investigation, clinical trials and observational research are all accepted by the platform. These will be curated to a standardised format and made available for access in 2017 when the platform construction is complete and the governance framework is in place and approved.

If you have other types of data, please contact us at ebola [at] iddo [dot] org to discuss how these can be incorporated.

In order to share data please:

  1. Register or login to the IDDO website
  2. Click here to 'Contribute new data'
  3. Name your dataset and accept the Terms of Submission. Complete the requested information about your dataset
  4. Upload data files and descriptive documentation such as data collection form, form completion guidelines, data dictionary etc.

Our data managers will curate the data to the standardised platform structure. They may contact you with questions about the data and will provide you with a copy of the curated dataset when complete.

 

As a separate initiative, in order to make the results of clinical trial data available more immediately, we are hosting a repository for clinical trial datasets which have approval for data sharing in place. These datasets can be accessed through a process of application to the Ebola Clinical Trial Data Access Committee. If you have a clinical trial dataset which you would like to include in this repository, please contact us at ebola [at] iddo [dot] org.