For the community

The IDDO Ebola research theme is a library of data from patients treated for Ebola. The data are anonymised so that no one can tell who the data comes from. Types of data include: information on symptoms of the disease, treatments used, and laboratory tests. The data will be made available for researchers so that they can find better treatments for Ebola patients, diagnose the disease quickly and accurately, and improve the outcomes of people infected with the disease in the future.

Vaccination campaign. Credit: UNMEER/Aalok Kanani
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Vaccination campaign. Credit: UNMEER/Aalok Kanani

The reason we have made a research theme for this data is because to do good research you need a lot of data. The more data available, the more accurate the research results will be. The research theme also ensures that data are kept for a long time so that researchers in the future can access it for new research questions.

If you have been infected with Ebola, data about your illness may be included. When data are submitted to us, the information is anonymised, so that anything which could identify the information as coming from you is removed, for example your name or address. Therefore, we don’t know if any of the data on the research theme is about your illness.

If you have any questions or concerns, please contact us at ebola@iddo.org or +44 1865 612 975.