Following an internal review, applications to access data are assessed as per the choice of the data contributor, either by:
- An independent IDDO Data Access Committee (DAC)
- A contributor-controlled process – where the data contributor assesses each data access application that requests the re-use of their data
The technical, governance and ethical framework for our data access strategy has been developed to promote access to data for research, while protecting the rights and privacy of the people and communities from which the data originate, and respecting the investment of the researchers who conducted the studies and collected the data.
Therefore, following permission to re-use data, data requestors must contact the relevant data contributors to offer the option of collaborating on the planning, execution and publication of the proposed secondary analysis, and the data contributor must also always be cited when data are re-used. All of the data re-use terms are set out in the Data Use Agreement.
View a visual summary of the IDDO Data Access Journey