IDDO sets very high standards of conduct for the individuals, teams and institutions involved in the Ebola Data Platform. We recognise our dual ethical responsibilities – to protect the dignity, rights and welfare of the people and communities affected by Ebola, and to ensure that data are used for research that maximises the benefits to these communities, now and in the future. The Platform follows an Ethics Framework, which promotes equitable access to data.
An agenda of prioritised research questions has been assembled by the Steering Committee and approved by the National Research Ethics Committees in the countries where data originate. Significant input from health, research and patient communities in affected countries has contributed to the development of the agenda, which is designed to inform the WHO Research & Development Roadmap for Ebola.
One of our key objectives is to facilitate collaboration, training and capacity strengthening in emerging infections research. We facilitate a number of training and engagement activities to ensure that the Platform design supports researchers in Ebola-affected countries to make best use of the data assembled.