Chagas disease

The IDDO Chagas disease data platform, developed in collaboration with Drugs for Neglected Diseases initiative (DNDi), brings together researchers in disease-endemic regions, global institutions, policy specialists and funders. Its goal is to strengthen the evidence base for diagnosing and treating Chagas disease, while creating a framework to improve and harmonise future data collection — making research more efficient and impactful. 

Since 2009, WWARN’s data sharing model has demonstrated that well-curated individual-patient data can generate policy-changing insights from existing studies. 

We are working with DNDi to extend this model to Chagas disease, which has distinctive research challenges: the time between acute infection and severe disease can span decades, and in chronic infection, it is difficult to measure cure, as parasite levels in blood are very low and seroconversion can take years. 

As a result, data are often lost over time. A secure, standardised, and reliable data platform helps to recover and unite these data, supporting more powerful analyses and better evidence for patient care.