Accessing data
Working with the Chagas disease research community, IDDO promotes data sharing and data re-use to generate new evidence that improves health and understanding of Chagas disease. Researchers can request access to Chagas disease data held in IDDO’s data repository.
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- Explore the types and volumes of data available on the platform
- Read the Data Access Guidelines
- Download and complete a Data Access Application Form. Include the details of the studies you are requesting as listed on the Data Inventory.
- Submit the application form to dataaccess@iddo.org
You data access application will be assessed according to the option picked by the original data contributor by:
- An independent Data Access Committee OR
- A contributor-controlled process – where the data contributor tassesses each data access application for re-using their data themselves
Once you have permission to re-use data, you as the data requestor must contact the relevant data contributors and offer the option of collaborating on the planning, execution and publication of the analyses you are planning. You also need to cite the original data contributor when data are re-used. All of the data re-use terms are set out in the Data Use Agreement.
As part of our data governance process, we carry out a Data Transfer Risk Assessment to ensure that we comply with the UK’s General Data Protection Regulations (GDPR), and specifically its guide to international transfers. Find out more about the GDPR and guidance on international transfers on the UK Information Commissioner’s Office website.
We are constantly curating new data, so we do occasionally have curated datasets which have not yet been updated into our data inventories: please get in touch dataaccess@iddo.org if you have questions.
The independent IDDO Data Access Committee (DAC) manages and oversees all data access applications for re-use of chagas disease data, in accordance with the Data Access Guidelines and the Data Use Agreement. The DAC aims to review applications and respond to requests within two months of submission. The Data Access Guidelines detail our principles of data access, criteria for DAC review, who can request data and how the DAC operates.
The technical, governance and ethical framework for our data access strategy has been developed to promote access to data for research, while protecting the rights and privacy of the people and communities from which the data originate, and respecting the investment of the researchers who conducted the studies and collected the data.
Contact us at dataaccess@iddo.org if you have any questions or would like further support.
Explore the types and volumes of data available on the platform.