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This Policy defines what constitutes a real or perceived conflict of interest and outlines the approach for managing conflicts as they arise. The scope of the Policy covers all members of IDDO's governance committess, including their supporting Secretariat function at IDDO.

Please contact us via email on info@iddo.org for the detailed IDDO Conflict of Interest Policy.

These Terms of Reference are produced by the independent Data Access Committee and describe their purpose, operation and composition.

Please contact us via email on info@iddo.org for the detailed IDDO Data Access Committee Terms of Reference

Please contact us via email on dataaccess@iddo.org for the detailed IDDO Data Access Guidelines 

This document records and demonstrates how IDDO embeds data protection by design and default into its data processing. While not required to complete a DPIA as a processor, IDDO maintains this DPIA as part of its data governance framework to achieve high standards, transparency and confidence in its handling of personal data.

Please contact us via email on info@iddo.org for the detailed IDDO Data Privacy Impact Assessment

This document sets out the obligations of the data requester/recipient with respect to handling the data including, in particular, data deletion upon completion of the analysis; not sharing the data beyond the authorised team and for the purpose stated in the approved data access application. 

If you are considering submitting a data access application, please email us at dataaccess@iddo.org to request this document. Please also see our list of frequently asked questions.

This document provides an overview of the data de-identification framework adopted by IDDO to preserve the privacy and data protection rights of the participants included in the research studies shared with IDDO.

IDDO maintains a current list of approved Sub-processors who process data on behalf of IDDO and in accordance with the Terms of Submission. All IDDO Sub-processors pass a Third-party Security Assessment conducted with the University of Oxford Information Compliance Team. Last updated: 23rd July 2025