IDDO's governance structure includes an advisory Board appointed to oversee the strategic direction and execution of IDDO’s objectives. In addition, a Scientific Advisory Group has been appointed for each research theme to guide and feedback on programmatic activities. Please see the individual research themes for details of governance activities.
IDDO has a robust data governance framework to protect the privacy, integrity and security of data across the IDDO platform, with access to data overseen by IDDO’s independent Data Access Committees. These systems and procedures are detailed within the individual research themes.
IDDO is working closely with the research community, ISARIC, the WHO's GOARN, and policy makers to respond to the unprecedented threat caused by the outbreak. IDDO's focus is the dissemination of standards and best practice to ensure the optimal collection of data. The aim is to address knowledge gaps and improve treatment outcomes for people affected by COVID-19.
Chagas disease, also known as American Trypanosomiasis, is a neglected disease caused by the Trypanosoma cruzi parasite. It is endemic in Latin America with increased migration contributing to rising patient numbers in non-endemic countries. Chagas disease has a high burden of morbidity and mortality affecting ~6-7 million people worldwide.
Substandard and falsified (SF) medicines negate the multiple benefits of modern healthcare, so good quality medical products are essential. By sharing global expertise and collating information, IDDO’s Medicine Quality Research Group strengthens knowledge of the scale of the problem and raises vital awareness among key stakeholders.
Antimicrobial resistance (AMR) is a serious threat to global public health that threatens the effective prevention and treatment of a range of infections caused by microorganisms such as bacteria, parasites, viruses and fungi. AMR can result in treatment failure, prolonged illness and increased healthcare costs.
IDDO is currently scoping several new disease themes. As part of this process, IDDO conducts a scoping and feasibility assessment to gain an understanding of the clinical data landscape for that disease and whether a data platform would be of value to help advance research and answer critical questions.
Scrub typhus is a bacterial disease spread by mites. It is most commonly found in the area bordered by East Russia and North Japan in the northeast, Afghanistan in the west, and North Australia in the south. Around a billion people are at risk of this disease but despite this, it is largely understudied.