Tools and resources

IDDO is committed to providing practical tools and services to support the collection of disease characterisation data and develop quality evidence on optimal treatment and response to emerging infections. 

Our resources help researchers gather and present evidence in a standardised way, and are intended to help facilitate a much faster, better coordinated and more effective response to future outbreaks. To find a wide selection of free online tools, services and resources that support malaria researchers to collect reliable and comprehensive evidence, visit the WWARN Toolkit.

Ebola virus disease (EVD) Core Dataset Case Record Forms 

This collection of data capture modules was developed by a collaboration of experts, coordinated through the World Health Organization (WHO) and the International Severe Acute Respiratory and Emerging Infection Consortium (ISARIC).

The purpose of the modules is to collect clinically relevant information to support the work of health care providers and inform understanding of Ebola virus disease. These forms are available in two sections and can be downloaded as Word or PDF documents. A copy of the EVD Infection Module CRF is also available with CDISC annotation for the use of database programmers to align their terminology and structures with international standards and facilitate pooling of datasets where appropriate.

EVD Infection Modules (the Core Clinical Dataset) - a focused set of critical data variables and core outcome measures which should be included in all patient management records and clinical research datasets for patients with active EVD infection. Collecting these data variables for all patients during EVD infection, treatment and research participation will deliver harmonized data which can easily be aggregated, tabulated and analysed across many different settings globally.

EVD Post-Infection Modules (the EVD Survivor CRF) - a set of data collection modules developed by survivor clinics in West Africa. Use of these modules will support clinics to collect the most relevant clinical data in harmonized structures so that data and information on EVD sequelae and outcomes can be compared and collated across centres.

Tool
The VL Surveyor is an online interactive map that summarises VL clinical trials across the world. The tool provides a clear and standardised visualisation of VL clinical trials to date to inform key...
Document
This document is the Core Clinical Dataset for Ebola virus disease.  The forms are featured in order of priority. Therefore, when resources are limited, data collection can be reduced as required...
Document
Ebola virus disease (EVD) Core Dataset Case Record Forms  This collection of data capture modules was developed by a collaboration of experts, coordinated through the World Health Organization (WHO)...
Document
This document is part of the Core Clinical Dataset for Ebola virus disease (EVD).  The data segments are divided into modules focused on specific aspects of care. Any combination of modules can be...
Procedure
Processes and instructions for recording and validating data (source and case record form) generated during a clinical trial.