Research Agenda

We are building a global resource of data collected for the treatment of schistosomiasis and soil-transmitted helminthiases (STHs). The Research Agenda explores key priority scientific questions that could be answered by this data platform to enhance care for patients and affected communities. This document has been created by the global schistosomiasis and STHs research community.

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IDDO is working with the global schistosomiasis and STHs research community and stakeholders to develop and sustain a data platform, which collates individual participant data (IPD) before and after treatment with antiparasitic drugs from clinical studies to deliver robust science and address knowledge gaps.

This Research Agenda was originally drafted by the IDDO team and the Scientific Advisory Committee, SAC, before being reviewed, first by a larger audience of identified experts from across the schistosomiasis and STHs communities, and then openly. The questions are those that can be addressed by using individual participant data from clinical trials around the world that have been pooled and standardised on the schistosomiasis and STHs data platform.

The Research Agenda is a live document and feedback is always welcome.


Download the Research Agenda here


Read our new paper about the three-stage process to develop the Research Agenda – ‘Improving anthelmintic treatment for schistosomiasis and soil-transmitted helminthiases through sharing and reuse of individual participant data’ [version 1; peer review: 1 approved]


You can provide feedback on the Research Agenda by contacting IDDO via email at