Data governance

We have undertaken a Privacy Impact Assessment, which includes a review of the laws and ethical guidelines relevant to how we protect personal data and identifies possible risks and appropriate measures to mitigate them. Based on this assessment, we have designed and implemented a security model which meets the highest technical standards and ensures that there are contractual measures in place to ensure the security of data and the privacy of those whose data are included.  

Credit: Epidemic Diseases Research Group Oxford/Dr Rebecca Inglis
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Credit: Epidemic Diseases Research Group Oxford/Dr Rebecca Inglis

Data are managed according to the process shown below. Data contributors are required to sign Terms of Submission which set out the responsibilities of both IDDO and the contributors. Researchers will be able to apply for access to the data by completing a Data Access Application Form which will be reviewed by an independent Data Access Committee. If the application is approved, the requestor will be required to sign a Data Transfer Agreement before the data are sent to them.