Accessing data

IDDO’s data repositories include thousands of datasets across many diseases, which are available, for free, to any researcher across the world to use in this their work. 

Accessing data
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Accessing data is straightforward: complete a short form outlining the data and variables you need, and your planned scientific use. Each request is reviewed by an independent expert committee, with the aim of facilitating responsible data access. 

Step-by-step guide to accessing data
Step 1 - Explore available data

Start by browsing the available data in your disease or research area of interest:

Make a note of the IDDO study IDs and variables you wish to request. You’ll need these in the application.

Step 2 - Review data access criteria

Your application will be reviewed either by the independent IDDO Data Access Committee or by the original data contributors, depending on the dataset.
The committee includes subject matter experts across all disease areas and is guided by a commitment to facilitating responsible data access.

We recommend reviewing the data access assessment criteria before you apply.

Step 3 - Define your research plan

Think through the key details of your project. You’ll need to provide:

  • A clear research question and scientific rationale
  • Names and roles of your research team
  • Methodology, analysis plan, and outcome measures
  • Ethical approvals or guidelines that apply
  • Your publication and dissemination plans

This information will be submitted along with your selected study IDs and variables in the Data Access Application.

Step 4 - Complete and submit your application

Download and fill in the Data Access Application Form, then email it to dataaccess@iddo.org.
We’ll review your form, request any additional information if needed, and then share it with the relevant review body.

Step 5 - Sign the Data Use Agreement

Before we can share data, you or an authorised signatory at your institution will need to sign a legally binding Data Use Agreement (DUA).
Please read this carefully and ensure your team complies with the terms.

Step 6 - Acknowledge and share your work

Cite IDDO and the relevant dataset DOIs in all outputs. Let us know if you’re presenting or publishing work using IDDO data—we’re always happy to help amplify your research.

Email info@iddo.org or tag us on BlueSky or LinkedIn.

Need help?

Start with our FAQs, or email dataaccess@iddo.org with any questions.