Accessing data
IDDO promotes data sharing and data re-use to generate new evidence that improves health and understanding of the diseases we focus on. Access to data held in IDDO’s data repositories can be requested by following a simple process. To view the data held by each disease theme, click on the relevant boxes below.
When researchers, organisations and clinicians contribute data to IDDO, they are asked to stipulate the level of access others will have to their data, including allowing requests for data access (re-use) to be decided by an independent Data Access Committee (DAC).
The DACs are responsible for agreeing the platform’s Data Access Guidelines, the principles under which access decisions are made, and reviewing Data Access Applications.
More information about the terms under which data can be accessed, eligibility of data requestors, and the application process can be found on each theme’s accessing data page below.
IDDO has two Data Access Committees, the IDDO DAC and the Ebola DAC. View a visual summary of the IDDO Data Access Journey.
IDDO promotes data sharing and data re-use for new analyses that address knowledge gaps and accelerate the response to COVID-19. IDDO and ISARIC have partnered in a global collaboration to collect and share COVID-19 clinical data. Researchers can request access to the data held in the repository.